Huntington's Disease
Being dressed for school, homemade meals, school and community involvement was a typical day for our childhood. Seeing our mother leave to work at HEB in her uniform and nicely combed hair is a vision we will never forget as she is the root to our hard work and ambition.
During our teenage years, our mother was disabled with a progressive brain disorder called Huntington's Disease that causes brain cells, called neurons, to die in various areas of the brain. As the years passed, she developed symptoms such as involuntary movements, impaired balance, dementia, difficulty with speech, and swallowing. Each generation after a parent is diagnosed has a 50% chance of inheriting the disease. She was the most independent woman we knew and became completely dependent on her daughters.
Throughout the years growing up, we had to find creative ways to grow in our careers and be able to care for our mother at the same time. During the Covid pandemic, it pushed us to innovate our business to a digital presence in order to have more time flexibility and be able to care for her during her last stage of the disease.
We worked on our products for 1 year and lost our mother right before we were scheduling our 1st day of production. Life does not give you the option to pause time but to live each day to the fullest. We do not have the presence of our mother to continue seeing our goals achieved, however, we do have the opportunity to make a change in the Huntington's Disease community.
Below is a link to donate to the Huntington's Disease Society of America in order to help find a cure.
Thank you for your support!